Dravet syndrome (DS) is a rare, severe form of epilepsy marked by frequent, prolonged, and often treatment-resistant seizures. Many children with DS also experience developmental delays that can affect learning, cognition, speech, and motor skills—making everyday childhood experiences harder to access for them and their families.

In partnership with UCB, we created Camp Small Steps—an unbranded event designed to foster inclusion, connection, and empowerment. By celebrating the small but meaningful milestones in these children’s lives, we gave families a day filled with possibility, pride, and play.